MRI manifestation of brainstem regulatory deficits in ME/CFS A researcher from the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Associate Professor Leighton Barnden presented their MRI research at the ME/CFS International Conference 2021:RID held in November last year. The NCNED has shared the recording of the Associate Professor’s presentation on their Facebook page. We… Continue reading MRI Research Presentation by Associate Professor Leighton Barnden
We are excited to welcome Dr Kiran Thapaliya (PhD) to our team. Kiran has accepted to be our Neuroimaging Research Advisor to the Board.
His expertise will strengthen the evidence on neurological abnormalities with ME-ICC. It will help us to create Clinical Pathway for ME and Neuroimaging protocol for clinicians.
On 16 and 17 November 2021, The National Centre for Neuroimmunology and Emerging Disease (NCNED) hosted the ME/CFS International Conference 2021: RID-Research Innovation and Discovery conference. As a caution, this layperson report may not agree with other attendants’ reports and feedbacks. I wish I could share the details of all presentations and lectures from the… Continue reading Research Innovation and Discovery (RID) International Conference 2021 – Report
We respectfully request clinicians and the community to support our call to establish the Statewide Clinical Network for ME in Queensland, Australia. Statewide Clinical Network for ME The objectives of the Statewide Clinical Network for ME will be; Enhance the understanding of ME and promote clarity and consistency for optimal clinical identification and treatment Consider… Continue reading Calling on the Statewide Clinical Network for ME
We are excited to welcome Dr Maria Alejandra Pinero de Plaza (PhD) to our team! Alejandra has accepted to be our Knowledge Translation and Research Advisor to the Board. Alejandra is a scientist committed to facilitating healthy living and better public health services through knowledge translation and health research. She is a Research Fellow at… Continue reading Knowledge Translation and Research Advisor to the Board
We are excited to announce that we are officially registered as an Australian charity effective from 7 June 2021. We are now waiting on the endorsement for Deductible Gift Recipient (DGR) status so that we can receive tax-deductible donations from Australian taxpayers. We will be grateful for your donation as a gesture of your support… Continue reading We Are Registered As A Charity
This article is cross-posted at Phoenix Rising. Please visit their site and join their discussion. On August 8th our ME community honours Severe ME Understanding and Remembrance Day, this year and every year. Rachel M. shares her thoughts on what it’s like living with Very Severe ME … Hello. I’m Rachel from Queensland, Australia. I… Continue reading Very Severe ME: Are Intimate Relationships Possible?
We are excited to introduce our 5-year Strategic Plan to you. Under Angela’s guidance and the expertise from Eucalypt Consulting, we identified our Vision, Mission and Values, then set the strategic goals and action plan. Our first goal is to establish an ME Clinic in Logan City, Queensland in 2 years. It was an uplifting… Continue reading Strategic Plan 2021 – 2026
We are proud to introduce our new logo, The Blue Nightingale. Here is the story behind our Blue Nightingale: Florence Nightingale was the British nurse who is considered to be the founder of modern nursing. Many physicians and medical historians believe she developed Myalgic Encephalomyelitis (ME) as a result of chronic brucellosis infection. She spent… Continue reading Our New Logo
Following up ME Awareness Month blog, I would like to share how beautifully Logan City night lit in blue. I wasn’t expecting to see them in my own eyes because I’m homebound and mostly bedbound. But my boyfriend surprised me with the spur of the moment drive. The beautiful blue light was peacefully, but unmistakeably… Continue reading Light Up The Night Australia 2021